Children with disability and/or delay should be involved in setting their own goals

Why it matters:

Including children in goal-setting:

  • is consistent with family-centred and client-centred care (best practice);
  • increases children’s motivation and engagement in therapy; 
  • ensures therapy focuses on life activities that are meaningful for families and children; and
  • improves outcomes.

Yes, but:

It can be hard to pull off in practice due to:

  • time and funding constraints;
  • a lack of professional knowledge, skill, and confidence; 
  • concerns about whether families are sufficiently informed and equipped to identify attainable goals;
  • power-imbalances between adults and children;
  • limited tools, processes, and workflows; and
  • conflicts between parent/carer and child priorities (e.g. between impairment- and participation focused goals).

State of play:

Research suggests we can involve children of all ages and abilities in therapy goal-setting by:

  • allocating time to talk to children about goals;
  • giving children and families information about the purpose of goal-setting;
  • communicating directly with children, and encouraging them to share their perspectives;
  • using visuals, scaffolds, and assistive technology when needed;
  • acknowledging children’s goals may differ from parent goals, and negotiating between them respectfully; and
  • working with children and families to co-construct goals, with therapist input on how to break down long-term goals into achievable short-term goals and steps.

Level up:

To skill up and encourage children to set their own goals, allied health professionals should consider:

  • evidence-informed frameworks like ENGAGE, DECIDE, and the F- Framework (see below);
  • established tools, like the Paediatric Activity Card Sort, the Perceived Self-Efficacy Goal-Setting System, the Canadian Occupational Performance Measure, and Goal Attainment Scale; and 
  • using a simple sentence completion tool with a picture of the child with the sentence: “I would like to be able to _______ at the end of therapy so I can _______ .”

Go deeper:

Pritchard, L., Phelan, S., McKillop, A., & Andersen, J. (2020). Child, parent, and clinician experiences with a child-driven goal setting approach in paediatric rehabilitationDisability and Rehabilitation44(7), 1042–1049. https://doi.org/10.1080/09638288.2020.1788178 (Abstract only)

Ryan, A. K., Miller, L., Rose, T. A., & Johnston, L. M. (2024). Optimal child-led goal setting practices for school-aged children with a disability or delay: an international Delphi consensus studyDisability and Rehabilitation, 1–9. https://doi.org/10.1080/09638288.2024.2419430 (Open Access)

Related articles and resources:

Focusing Speech Therapy on Functional Outcomes: A Refresher

Not About “Fixing”: Using the F-Framework to support Children with Communication Disorders and their Families

F-Framework discussion and conversation starters for younger school-aged children

Functional Communication Probes for Young School-Aged Children


Man with glasses standing in front of a bookcase

Hi there, I’m David Kinnane.

Principal Speech Pathologist, Banter Speech & Language

Our talented team of certified practising speech pathologists provide unhurried, personalised and evidence-based speech pathology care to children and adults in the Inner West of Sydney and beyond, both in our clinic and via telehealth.

David Kinnane
Speech-Language Pathologist. Lawyer. Father. Reader. Writer. Speaker.

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